Cecilia Days: Sleeping in Your Own Bed is Nice

We are so home!

We didn't expect to go home so soon- we practically moved into the hospital just making sure we had our necessities. We have a lot of necessities.

Yeah, so- Cecilia has been doing just great throughout her recovery. Her appetite came back full force- she is soooo going to miss the hospital eggs- for real- I have no idea what is in those eggs- but we may have to make special trips to the hospital cafeteria for them. Grody, right? Yeah- her appetite was great and she's really comfortable and she's dancing and smiling and pooping and drinking water and sleeping. She became a very boring patient aside from her adoring fans that linger to catch the wave or the smile or the dance. She is so friggin cute. I said it- I'm not taking it back- I'm bias as hell and I don't give a damn! We kind of miss being in the hospital just to have the excuse to stare at her in the same room all day. Walls are so overrated.

The details:
This morning they still had her on the ECG telemetry monitor but since they never hooked her back up to the pulse oximetry to measure the oxygen saturation in her blood- we just let it be. She still had her JP drain and pleural catheter. Her volumes were pretty low and the doctors were comfortable with pulling them after her echocardiogram- they took a peek at her pleural space to look for any significant pockets of fluid and found none to be significant. With that information, we drugged the little lady with some oxycodone and pulled the drains. We also took off the pulse ox and ECG leads. She was not happy about all that jazz- there's just something about being held down against your will and then have pain happen that she doesn't agree with :(. It was pretty sad but she bounced back almost immediately with promises of pirate booty and dinosaur train shows. We snuggled afterward with said activities. Then the rest of the day consisted of slowly packing things up, giving the little lady a good scrub down with towels we didn't have to wash and visiting with buddies. I think we are going to miss just having folks over to our giant beautiful hospital for drinks on the veranda... We will survive I suppose.

We went home at about 4pm after we gave her the last doses in the hospital of some pain medication. It's all up to us to keep the plan alive now- I've made a treatment chart and I am crossing my fingers. We have about 6 medications to give her throughout the day- oi. She'll have to stay on 2 of them for the next month or so, but that's no different from what we've always been doing. She fell asleep in the car on the way home and woke up grumpy as can be in her own bed. Back to normal. A little time, veggie booty and blueberries brought her spirits up. If you don't know what veggie booty is- go forth to the chip aisle and educate thyself.

So, now- we are going to try to get back to life while managing Cecilia's recovery. We can't pick her up under her arms for 4-6 weeks and no submerging in water 10 days post-op. We will have a post-op recheck with her cardiologist in a couple of weeks. This feels a little like being pushed out to sea with good supplies but little contact during the voyage to the other side- the ocean of time between now and a doctor looking at her feels immense. I'm sure we will make it through like we always do- and we can soooo get help when we need it. They totally spoil us there at the Randall's Children's Hospital- I want my nurse call button back!!!

There's not much more to say- she's in such great spirits- we danced to some LCD sound system and Taylor Swift when she woke up from her nappy and dropped the grumpy pants mood. I am venturing a guess that I won't be blogging daily now- I will add them as best I can, of course :).

Thank you thank you thank you everyone for caring about us and for us. We couldn't have maintained the sense of humor and safety without you all. I am so glad to have our little girl home now- all that fear and stress is behind us and now we can party without a care in the world! (ish) ;)

xoxoxo,
Sara and Mark

.....pictures: